Elin Hjorth

The Department of Health Care Sciences

Title: Lecturer, PhD

Phone: +46-76 636 51 01

Mail: elin.hjorth@mchs.se

Address: Marie Cederschiöld högskola, Box 11189, 100 61 Stockholm
Visiting address: Folkungagatan 127

Research area

In my doctoral project I investigate experiences of living with severe Spinal muscular atrophy (SMA) (Type I-II). SMA affects children and the disease is characterized by progressive muscle weakness. No present curative treatment is available. Affected families face a life with daily care and nursing, recurrent hospitalizations and difficult decisions regarding the child's treatment, including the decision if/when respiratory support should introduced. The project includes both the parents' experiences of care, and the child´s and the family’s experience of living with the disease. With increased knowledge, the hope is to contribute to a better care for ill children and their families.

2014 CNS in Children & Youth Health Care
2014 MSc in Nursing
2010 RN

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Last updated:
25 May 2023