Elin Hjorth

The Department of Health Care Sciences

Title: Lecturer, PhD

Phone: +46-76 636 51 01

Mail: elin.hjorth@mchs.se

Address: Marie Cederschiöld högskola, Box 11189, 100 61 Stockholm
Visiting address: Folkungagatan 127

Research area

In my doctoral project I investigate experiences of living with severe Spinal muscular atrophy (SMA) (Type I-II). SMA affects children and the disease is characterized by progressive muscle weakness. No present curative treatment is available. Affected families face a life with daily care and nursing, recurrent hospitalizations and difficult decisions regarding the child's treatment, including the decision if/when respiratory support should introduced. The project includes both the parents' experiences of care, and the child´s and the family’s experience of living with the disease. With increased knowledge, the hope is to contribute to a better care for ill children and their families.

Degrees
2014 CNS in Children & Youth Health Care
2014 MSc in Nursing
2010 RN

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Elin Hjorth, Ulrika Kreicbergs, Thomas Sejersen, Ulla Werlauff, Jes Rahbek, Malin Lövgren (2022). Parents’ advice to other parents of children with spinal muscular atrophy: Two nationwide follow-ups
Elin Hjorth, Hanna Gabrielsson, Lilian Pohlkamp, Viktoria Wallin (2021). Patientorganisationer som företräder riskgrupper under covid-19-pandemin: förändringar i organisation och relation till andra aktörer
Elin Hjorth, Malin Lovgren, Ulrika Kreicbergs, Thomas Sejersen, Eric Asaba (2021). "Suddenly we have hope that there is a future": Two families’ narratives when a child with spinal muscular atrophy receives a new effective drug
Lilian Pohlkamp, Viktoria Wallin, Elin Hjorth, Hanna Gabrielsson (2021). Ömsesidiga hjälporganisationer i Sverige uppvisar resiliens under covid-19-pandemin
Elin Hjorth (2020). Experiences of care and everyday life in a time of change for families in which a child has spinal muscular atrophy
[Fulltext]
Elin Hjorth, Ulrika Kreicbergs, Thomas Sejersen, Jørgen Jeppesen, Ulla Werlauff, Jes Rahbek, Malin Lövgren (2019). Bereaved Parents More Satisfied With the Care Given to Their Child With Severe Spinal Muscular Atrophy Than Nonbereaved
Elin Hjorth, Ulrika Kreicbergs, Thomas Sejersen, Malin Lövgren (2018). Parents' advice to healthcare professionals working with children who have spinal muscular atrophy

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Last updated:
25 May 2023