Anette Alvariza

Department of Health Care Sciences, Palliative Research Centre

Title: Professor in Palliative Care, Senior Lecturer, CNS in Cancer Care

Phone: +46-76 636 50 73

Mail: anette.alvariza@mchs.se

Address: Marie Cederschiöld högskola, Palliativt forskningscentrum, Box 11189, 100 61 Stockholm
Visiting address: Stigbergsgatan 30

Area of work

I work as senior lecturer at the Department of Health Care Sciences. The research I conduct at the Palliative Research Centre has its basis in clinical practice as a nurse in palliative care.

My research focuses mainly on interventions aiming to support family caregivers during palliative homecare. While caring for patients in the final stages of life I also meet their families, and in time my understanding of the complexity of their situation has increased. They are often indispensable caregivers, but also need support themselves. My main research questions focus on what kind of support needs family caregivers in different ages have, how these needs can be met, how support from health care providers can be designed, and the significance and effects of interventions. I also have a research interest in the long term significance and effects of support, and if it is relevant and what effects and influences it has on the family caregivers’ experiences on grief. Ongoing and future studies will also examine whether support to family caregivers has any significance and effects from the patient's perspective.

Within my research area I am continuously involved in projects that translate and validate scales to facilitate research concerning family caregivers’ experiences.

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Annika M Kisch, Karin Bergkvist, Sólveig Adalsteinsdóttir, Christel Wendt, Anette Alvariza, Jeanette Winterling (2022). A person-centred intervention remotely targeting family caregivers' support needs in the context of allogeneic hematopoietic stem cell transplantation: A feasibility study
Pardis Momeni, Kristofer Årestedt, Anette Alvariza, Elisabeth Winnberg, Ida Goliath, Åsa Kneck, Janeth Leksell, Mats Ewertzon (2022). A survey study of family members' encounters with healthcare services within the care of older people, psychiatric care, palliative care and diabetes care
Megan Weber Falk, Rakel Eklund, Ulrika Kreicbergs, Anette Alvariza, Malin Lövgren (2022). Breaking the silence about illness and death: Potential effects of a pilot study of the family talk intervention when a parent with dependent children receives specialized palliative home care
Rakel Eklund, Li Jalmsell, Ulrika Kreicbergs, Anette Alvariza, Malin Lövgren (2022). Children’s experiences of the family talk intervention when a parent is cared for in palliative home care: A feasibility study
Rakel Eklund, Ulrika Kreicbergs, Anette Alvariza, Malin Lövgren (2022). Children's views are not taken into account in accordance with article 12 of the united nations convention on the rights of the child in the family talk intervention when a parent is cared for in palliative Care
Maria Norinder, Anette Alvariza, Kristofer Årestedt, Susanne Lind (2022). Ett personcentrerat förhållningssätt för att stödja närstående i den specialiserade palliativahemsjukvården: CSNAT interventionen (CSNAT-I)
Tina Lundberg, Kristofer Årestedt, Ulla Forinder, Mariann Olsson, Carl Johan Fürst, Anette Alvariza (2022). Higher Self-Esteem Associated With Less Symptoms of Anxiety and Depression Among Young Adults After the Loss of a Parent to Cancer-A Longitudinal Study
Nina Carlsson, Anders Bremer, Anette Alvariza, Kristofer Årestedt, Lena Axelsson (2022). Losing a close person following death by sudden cardiac arrest: Bereaved family members' lived experiences
Megan Weber Falk, Alison Salloum, Anette Alvariza, Ulrika Kreicbergs, Josefin Sveen (2022). Outcomes of the grief and communication family support intervention on parent and child psychological health and communication
Jeanette Winterling, Annika Kisch, Anette Alvariza, Kristofer Årestedt, Karin Bergkvist (2022). Preparedness for family caregiving prior to allogeneic hematopoietic stem cell transplantation
Anna Wikman, Emma Hovén, Anette Alvariza, Malin Lövgren, Ulrika Kreicbergs, Charlotte Skoglund, Emma Fransson, Gustaf Ljungman, Rickard Ljung, Lisa Ljungman (2022). Psychotropic medication use in parents of survivors of adolescent cancer: A register-based cohort study
Susanne Lind, Astrid Bengtsson, Anette Alvariza, Anna Klarare (2022). Registered nurses’ experiences of caring for patients in hospitals transitioning from curative to palliative care: A qualitative study
Maja Holm, Megan Weber Falk, Malin Lövgren, Ulrika Kreicbergs, Anette Alvariza, Josefin Sveen (2022). Sources of social support and its importance for cancer-bereaved spouses and their minor children: A cross-sectional study
Rakel Eklund, Malin Lövgren, Anette Alvariza, Ulrika Kreicbergs, Camilla Udo (2022). Talking about death when a parent with dependent children dies of cancer: A pilot study of the Family Talk Intervention in palliative care
Megan Weber, Anette Alvariza, Ulrika Kreicbergs, Josefin Sveen (2022). The Grief and Communication Family Support Intervention: Intervention Fidelity, Participant Experiences, and Potential Outcomes
Charlotte Angelhoff, Josefin Sveen, Anette Alvariza, Megan Weber Falk, Ulrika Kreicbergs (2021). Communication, self-esteem and prolonged grief in parent-adolescent dyads, 1-4 years following the death of a parent to cancer
Megan Weber, Anette Alvariza, Ulrika Kreicbergs, Josefin Sveen (2021). Family Communication and Psychological Health in Children and Adolescents Following a Parent's Death From Cancer.
Maria Norinder, Kristofer Årestedt, Susanne Lind, Lena Axelsson, Gunn Grande, Gail Ewing, Maja Holm, Joakim Öhlén, Inger Benkel, Anette Alvariza (2021). Higher levels of unmet support needs in spouses are associated with poorer quality of life: a descriptive cross-sectional study in the context of palliative home care
Maja Holm, Megan Weber Falk, Anette Alvariza, Josefin Sveen, Ulrika Kreicbergs (2021). How parents of dependent children reason about their partner's impending death due to cancer
Kristofer Årestedt, Margareta Brännström, Lorraine S. Evangelista, Anna Strömberg, Anette Alvariza (2021). Palliative key aspects are of importance for symptom relief during the last week of life in patients with heart failure
Megan Weber Falk, Charlotte Angelhoff, Anette Alvariza, Ulrika Kreicbergs, Josefin Sveen (2021). Psychological symptoms in widowed parents with minor children, 2-4 years after the loss of a partner to cancer
Anna O'Sullivan, Anette Alvariza, Joakim Öhlén, Cecilia Larsdotter (2021). Support Received by Family Members Before, at and After an Ill Person’s Death
Nina Carlsson, Anette Alvariza, Anders Bremer, Lena Axelsson, Kristofer Årestedt (2021). Symptoms of Prolonged Grief and Self-Reported Health Among Bereaved Family Members of Persons Who Died From Sudden Cardiac Arrest
Anette Alvariza, Li Jalmsell, Rakel Eklund, Malin Lövgren, Ulrika Kreicbergs (2021). The Family Talk Intervention in palliative home care when a parent with dependent children has a life-threatening illness: A feasibility study from parents' perspectives
Anna O'Sullivan, Anette Alvariza, Joakim Öhlén, Cecilia Larsdotter ex. Håkanson (2021). The influence of care place and diagnosis on care communication at the end of life: bereaved family members' perspective
Rakel Eklund, Ulrika Kreicbergs, Anette Alvariza, Malin Lövgren (2020). Children’s Self-Reports About Illness-Related Information and Family Communication When a Parent Has a Life-Threatening Illness
Megan Weber Falk, Anette Alvariza, Ulrika Kreicbergs, Josefin Sveen (2020). End-of-Life-Related Factors Associated with Posttraumatic Stress and Prolonged Grief in Parentally Bereaved Adolescents
Annika M. Kisch, Karin Bergkvist, Anette Alvariza, Kristofer Årestedt, Jeanette Winterling (2020). Family caregivers' support needs during allo-HSCT: a longitudinal study
Anette Alvariza (2020). Hur är det att vara forskare inom palliativ vård?
Lena Axelsson, Anette Alvariza, Maja Holm, Kristofer Årestedt (2020). Intensity of Predeath Grief and Postdeath Grief of Family Caregivers in Palliative Care in Relation to Preparedness for Caregiving, Caregiver Burden, and Social Support
Lena Axelsson, Anette Alvariza, Nina Carlsson, S. Robin Cohen, Richard Sawatzky, Kristofer Årestedt (2020). Measuring quality of life in life-threatening illness: content validity and response processes of MQOL-E and QOLLTI-F in Swedish patients and family carers
Malin Lövgren, Camilla Udo, Anette Alvariza, Ulrika Kreicbergs (2020). Much is left unspoken: Self-reports from families in pediatric oncology
Anette Alvariza, Bertil Axelsson, Birgit Rasmussen, Britt-Marie Ternestedt, Carl Johan Fürst (2020). Ny definition av palliativ vård med fokus på lidande
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Anette Alvariza, Maria Mjörnberg, Ida Goliath (2020). Palliative care nurses' strategies when working in private homes: A photo-elicitation study
Tina Lundberg, Ulla Forinder, Mariann Olsson, Carl Johan Fürst, Kristofer Årestedt, Anette Alvariza (2020). Poor Psychosocial Well-Being in the First Year-and-a-Half After Losing a Parent to Cancer - A Longitudinal Study Among Young Adults Participating in Support Groups.
Maja Holm, Anette Alvariza (2020). Stödinterventioner till närstående under pågående vård
Rakel Eklund, Anette Alvariza, Ulrika Kreicbergs, Li Jalmsell, Malin Lövgren (2020). The family talk intervention for families when a parent is cared for in palliative care: potential effects from minor children’s perspectives
Maja Holm, Kristofer Årestedt, Joakim Öhlen, Anette Alvariza (2020). Variations in grief, anxiety, depression, and health among family caregivers before and after the death of a close person in the context of palliative home care
Camilla Udo, Malin Lövgren, Josefin Sveen, Tove Bylund-Grenklo, Anette Alvariza, Ulrika Kreicbergs (2019). A Nationwide Study of Young Adults' Perspectives on Participation in Bereavement Research
Megan Weber, Anette Alvariza, Ulrika Kreicbergs, Josefin Sveen (2019). Adaptation of a Grief and Communication Family Support Intervention for Parentally Bereaved Families in Sweden
Maja Holm, Kristofer Årestedt, Anette Alvariza (2019). Associations between Predeath and Postdeath Grief in Family Caregivers in Palliative Home Care
Megan Weber, Anette Alvariza, Ulrika Kreicbergs, Josefin Sveen (2019). Communication in families with minor children following the loss of a parent to cancer.
Tina Lundberg, Ulla Forinder, Mariann Olsson, Carl Johan Fürst, Kristofer Årestedt, Anette Alvariza (2019). Corrigendum to "Bereavement stressors and psychosocial well-being of young adults following the loss of a parent - A cross-sectional survey" [Eur. J. Oncol. Nurs. 35 (2018) 33-38].
Anette Alvariza, Olav Lindqvist, Joakim Öhlén, Birgit Holritz Rasmussen (2019). Omvårdnad vid livets slut
Anette Alvariza, Maja Holm (2019). Palliativ vård i hemmet
Cecilia Högberg, Anette Alvariza, Ingela Beck (2019). Patients' experiences of using the Integrated Palliative care Outcome Scale for a person-centered care: A qualitative study in the specialized palliative home-care context.
Maja Holm, Anette Alvariza, Carl-Johan Fürst, Joakim Öhlen, Kristofer Årestedt (2019). Psychometric evaluation of the anticipatory grief scale in a sample of family caregivers in the context of palliative care.
Anneli Ozanne, Richard Sawatzky, Cecilia Håkanson, Anette Alvariza, Carl Johan Fürst, Kristofer Årestedt, Joakim Öhlén (2019). Symptom relief during last week of life in neurological diseases.
Anette Alvariza, Maja Holm, Inger Benkel, Maria Norinder, Gail Ewing, Gunn Grande, Cecilia Håkanson, Joakim Öhlen, Kristofer Årestedt (2018). A person-centred approach in nursing: Validity and reliability of the Carer Support Needs Assessment Tool.
Mats Ewertzon, Anette Alvariza, Elisabeth Winnberg, Janeth Leksell, Birgitta Andershed, Ida Goliath, Pardis Momeni, Åsa Kneck, Maria Skott, Kristofer Årestedt (2018). Adaptation and evaluation of the Family Involvement and Alienation Questionnaire for use in the care of older people, psychiatric care, palliative care and diabetes care
Anna O'Sullivan, Joakim Öhlen, Anette Alvariza, Cecilia Håkanson (2018). Adaptation and validation of the VOICES (SF) questionnaire - for evaluation of end-of-life care in Sweden.
Anna O'Sullivan, Anette Alvariza, Joakim Öhlen, Cecilia Håkanson (2018). Bereaved Family Members' Satisfaction with Care during the Last Three Months of Life for People with Advanced Illness.
Tina Lundberg, Ulla Forinder, Mariann Olsson, Carl Johan Fürst, Kristofer Årestedt, Anette Alvariza (2018). Bereavement stressors and psychosocial well-being of young adults following the loss of a parent: A cross-sectional survey
Anette Alvariza, Kristofer Årestedt, Kurt Boman, Margareta Brännström (2018). Family members' experiences of integrated palliative advanced home and heart failure care: A qualitative study of the PREFER intervention.
Maja Holm, Anette Alvariza, Carl-Johan Fürst, Joakim Öhlen, Kristofer Årestedt (2018). Psychometric evaluation of the Texas revised inventory of grief in a sample of bereaved family caregivers.
Kristofer Årestedt, Anette Alvariza, Kurt Boman, Joakim Öhlén, Ida Goliath, Cecilia Håkanson, Carl Johan Fürst, Margareta Brännström (2018). Symptom Relief and Palliative Care during the Last Week of Life among Patients with Heart Failure: A National Register Study.
Rakel Eklund, Ulrika Kreicbergs, Anette Alvariza, Malin Lövgren (2018). The family talk intervention in palliative care: a study protocol
Lena Axelsson, Anette Alvariza, Jenny Lindberg, Joakim Öhlén, Cecilia Håkanson, Helene Reimertz, Carl-Johan Fürst, Kristofer Årestedt (2018). Unmet Palliative Care Needs Among Patients With End-Stage Kidney Disease: A National Registry Study About the Last Week of Life
Peter Hagell, Anette Alvariza, Albert Westergren, Kristofer Årestedt (2017). Assessment of burden among family caregivers of people with Parkinson's disease using the Zarit Burden Interview.
Maja Holm, Kristofer Årestedt, Ida Carlander (Goliath), Yvonne Wengström, Joakim Öhlen, Anette Alvariza (2017). Characteristics of the Family Caregivers Who Did Not Benefit From a Successful Psychoeducational Group Intervention During Palliative Cancer Care: A Prospective Correlational Study.
Maja Holm, Ida Goliath, Hanna Södlind, Anette Alvariza (2017). Leading an intervention for family caregivers: a part of nursing in palliative care
Jonas Smedbäck, Joakim Öhlén, Kristofer Årestedt, Anette Alvariza, Carl-Johan Fürst, Cecilia Håkanson (2017). Palliative care during the final week of life of older people in nursing homes: A register-based study.
Maria Norinder, Ida Goliath, Anette Alvariza (2017). Patients' experiences of care and support at home after a family member's participation in an intervention during palliative care.
Maja Holm, Anette Alvariza, Carl-Johan Fürst, Yvonne Wengström, Kristofer Årestedt, Joakim Öhlen, Ida Goliath (2017). Recruiting participants to a randomized controlled trial testing an intervention in palliative cancer care - The perspectives of health care professionals.
Joakim Öhlén, Lara Russell, Cecilia Håkanson, Anette Alvariza, Carl Johan Fürst, Kristofer Årestedt, Richard Sawatzky (2017). Variations in care quality outcomes of dying people: Latent class analysis of an adult national register population.
Yvonne Olsson, Lena Clarén, Anette Alvariza, Kristofer Årestedt, Peter Hagell (2016). Health and Social Service Access Among Family Caregivers of People with Parkinson's Disease.
Anette Alvariza, Malin Lövgren, Tove Bylund-Grenklo, Pia Hakola, Carl Johan Fürst, Ulrika Kreicbergs (2016). How to support teenagers who are losing a parent to cancer: Bereaved young adults' advice to healthcare professionals-A nationwide survey.
Maja Holm, Kristofer Årestedt, Ida Carlander (Goliath), Carl-Johan Fürst, Yvonne Wengström, Joakim Öhlen, Anette Alvariza (2016). Short-term and long-term effects of a psycho-educational group intervention for family caregivers in palliative home care - results from a randomized control trial.
Josefin Sveen, Ulrika Kreicbergs, Ulrica Melcher, Anette Alvariza (2016). Teenagers' reasoning about a parent's recent death in cancer
Anette Alvariza, Maja Holm, Tove Bylund-Grenklo, Ida Goliath, Ulrika Kreicbergs (2016). Viktigt att stärka närståendes möjligheter att förbereda sig
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Maja Holm, Ida Carlander (Goliath), Carl-Johan Fürst, Yvonne Wengström, Kristofer Årestedt, Joakim Öhlen, Anette Henriksson (Alvariza) (2015). Delivering and participating in a psycho-educational intervention for family caregivers during palliative home care: A qualitative study from the perspectives of health professionals and family caregivers
Anette Henriksson (Alvariza), Ida Carlander (Goliath), Kristofer Årestedt (2015). Factors associated with feelings of reward during ongoing family palliative caregiving.
Anette Henriksson (Alvariza), Ida Carlander (Goliath), Kristofer Årestedt (2015). Feelings of rewards among family caregivers during ongoing palliative care
Ulrica Melcher, Rolf Sandell, Anette Henriksson (Alvariza) (2015). Maintaining everyday life in a family with a dying parent: Teenagers' experiences of adapting to responsibility.
Anette Henriksson (Alvariza), Peter Hudson, Joakim Öhlen, Kristina Thomas, Maja Holm, Ida Carlander (Goliath), Peter Hagell, Kristofer Årestedt (2015). Use of the Preparedness for Caregiving Scale in Palliative Care: A Rasch Evaluation Study.
Kristofer Årestedt, Ida Carlander (Goliath), Anette Henriksson (Alvariza) (2014). Factors Associated with Feelings of Reward during Ongoing Palliative Family Caregiving
Anette Henriksson (Alvariza), Ida Carlander (Goliath), Kristofer Årestedt (2014). Feelings of Reward among Family Caregivers during Ongoing Palliative Care
Kristofer Årestedt, A Strömberg, T Jaarsma, Joakim Öhlén, Anette Henriksson (Alvariza) (2014). Palliative Care Needs in Terms of Signs, Symptoms and Health Related Quality of Life (HRQoL) among Patients with Advanced Chronic Heart Failure
Maja Holm, Anette Henriksson (Alvariza), Ida Carlander (Goliath), Yvonne Wengström, Joakim Öhlen (2014). Preparing for family caregiving in specialized palliative home care: an ongoing process
Anna Janze, Anette Henriksson (Alvariza) (2014). Preparing for palliative caregiving as a transition in the awareness of death: family carer experiences.
Ulrica Melcher, Anette Henriksson (Alvariza), Rolf Sandell (2014). Teenagers with a Dying Parent: A Qualitative Retrospective Study
Maja Holm, Anette Henriksson (Alvariza), Yvonne Wengström, Joakim Öhlén (2014). The Process of Preparedness for Caregiving among Family Members in Palliative Home Care
Anette Henriksson (Alvariza), Kristofer Årestedt, Eva Benzein, Britt-Marie Ternestedt, Birgitta Andershed (2013). Effects of a support group programme for patients with life-threatening illness during ongoing palliative care
Anette Henriksson (Alvariza), Kristofer Årestedt (2013). Exploring factors and caregiver outcomes associated with feelings of preparedness for caregiving in family caregivers in palliative care: A correlational, cross-sectional study
Anette Henriksson (Alvariza) (2013). Förberedelse för att vårda: en intervention för närstående under pågående palliativ vård
Anette Henriksson (Alvariza) (2013). Stödinterventioner till närstående under pågående vård
Anette Henriksson (Alvariza) (2012). A support group programme for family members: an intervention during ongoing palliative care
Anette Henriksson (Alvariza), Birgitta Andershed, Eva Benzein, Kristoffer Årestedt (2012). Adaptation and psychometric evaluation of the Preparedness for Caregiving Scale, Caregiver Competence Scale and Rewards of Caregiving Scale in a sample of Swedish family members of patients with life-threatening illness
Anette Henriksson (Alvariza), Eva Benzein, Britt-Marie Ternestedt, Birgitta Andershed (2011). Meeting the needs of family members of persons with life threatening illness: a support group programme during ongoing palliative care
Anette Henriksson (Alvariza) (2010). A support Group Programme for family members of persons with life-threatening illness.
Anette Henriksson (Alvariza), Birgitta Andershed (2007). A support group programme for relatives during the late palliative phase.

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Last updated:
30 March 2022