Palliative Research Center
Phone: +46-766 36 51 21
Ulrikas research is focused on the child in palliative care, both as patient and next-of-kin, and their families. The child’s voice is seldom heard in medical research except through parents and health care staff.
Her research is based on three main methodological principles. One is a study design which includes both the seriously ill and the family. Another is that factors contributing to suffering beyond bereavement are identified in a qualitative phase through interviews. This is expected to disclose potential harmful factors in the healthcare and family system that can be modified or avoided to improve quality of life for the child and the family. The third is to gather quantitative data, preferably through nationwide questionnaires, for statistical analysis permitting determination of the impact of the different identified factors.
In addition to Ulrikas research, sha has initiated the formation of a national network for paediatric palliative care in Sweden aiming at exchanging experiences between different centres. This is anticipated to provide common basic guidelines for children with palliative care needs. Moreover, an educational program is under development.
Her task within paediatric palliative care also includes teaching and guidance of doctoral students.
Beyond the means from Ersta Sköndal Bräcke University College her current research is supported by Gålö Foundation, The Erling Persson Family Foundation and Freja Foundation.
Karolinska Institute, Dept. of Women's and Children's Health